Correo Electrónico
DNINFOA - SIA
Bibliotecas
Convocatorias
Identidad U.N.
Published
Más allá de los síntomas: vivir con VIH es motor de cambio
Beyond symptoms: living with HIV is a life changing motor
Além dos sintomas: viver com HIV é motor de mudança
DOI:
https://doi.org/10.15446/av.enferm.v36n3.71588Keywords:
VIH, Discriminación Social, Estigma, Calidad de Vida, Síntomas. (es)HIV, Discriminação Social, Estigma, Qualidade de Vida, Sintomas (en)
HIV, Social Discrimination, Social Stigma, Quality of Life, Symptom (pt)
Downloads
Objetivo: describir en profundidad la experiencia de personas con VIH durante el proceso de tratamiento y atención en instituciones de salud.
Materiales y métodos: diseño de teoría fundamentada en entrevistas en profundidad a once personas con VIH que asistían a programas de atención ambulatoria en Cali, Colombia.
Resultados: categoría central denominada: vivir con VIH es motor para el cambio de vida y seis categorías: experimentando los síntomas; sospechando el diagnóstico; recordando información sobre ser portador del VIH; experimentando crisis existencial: el poder de las emociones; reconociendo la bondad de los medicamentos y obteniendo apoyo social: considerado aspecto fundamental.
Conclusión: los participantes al recibir el diagnóstico experimentaron crisis existencial y emocional que con la ayuda de familiares, personal de salud, la pareja y los pares, les facilitó tomar conciencia de su estado actual y aceptar su situación; sus hábitos se tornaron saludables y la creencia en un ser superior se reafirmó.
Objective: to describe in depth the experience of people with HIV during the process of treatment and care in health institutions.
Materials and Methods: grounded theory design with in-depth interviews to 11 people with HIV who attended ambulatory care programs in Cali, Colombia.
Results: central category: living with HIV as a life changing motor and 6 categories: experiencing the symptoms; suspecting the diagnosis;getting information about being a carrier of HIV; experiencing existential crisis; the power of the emotions; recognizing the goodness of the medicines; and getting social support: considered a fundamental aspect.
Conclusion: the participants, upon receiving the diagnosis, experienced existential and emotional crisis that with help from family members, health personnel, couples and peers, made it easier to become aware of their current status and accept their situation; theirs habits became healthy and the belief in a superior being was reaffirmed.
Objetivo: descrever em profundidade a experiência de pessoas com HIV durante o processo de tratamento e atenção em instituições de saúde.
Materiais e métodos: desenho de teoria fundamentada em entrevistas em profundidade a onze pessoas com HIV que frequentavam programas de atenção ambulatória em Cali, Colômbia.
Resultados: categoria central denominada: viver com HIV é motor para a mudança de vida e seis categorias: experimentando os sintomas; suspeitando do diagnóstico; recebendo informação sobre ser portador do HIV; experimentando crise existencial; o poder das emoções; reconhecendo a bondade dos medicamentos e obtendo apoio social: considerado aspecto fundamental.
Conclusión: os participantes ao receber o diagnóstico experimentaram crise existencial e emocional que com a ajuda de familiares, pessoal de saúde, o(a) companheiro(a)/esposo(a) e os pais, que facilitou tomar consciência de seu estado atual e aceitar sua situação; seus hábitos se tornaram saudáveis e a crença em um ser superior se reafirmou.
References
(1) Sun W, Wu M, Qu P, Lu C, Wang L. Psychological wellbeing of people living with HIV/AIDS under the new epidemic characteristics in China and the risk factors: a population-based study. Int J Infect Dis [Internet]. 2014 [citado 2018 abr. 16];28:e147-52. Disponible en DOI: http://dx.doi.org/10.1016/j.ijid.2014.07.010
(2) Fondo Colombiano de Enfermedades de Alto Costo. Situación del VIH en Colombia 2016 [Internet]. Bogotá: Cuenta de Alto Costo; 2017 [citado 2018 may. 9]. 96p. Disponible en: https://cuentadealtocosto.org/site/images/Publicaciones/CAC.Co_2017_06_13_Libro_Sit_VIH_2016_V_0.1.pdf.pdf
(3) Kemppainen JK, MacKain S, Alexander M, Reid P, Parks M. Posttraumatic stress disorder and stressful life events among rural women with HIV disease. JANAC [Internet]. 2016 [citado 2017 mar. 26];28(2):216-25. Disponible en: DOI: http://dx.doi.org/10.1016/j.jana.2016.06.001
(4) Maganga L, Nitayaphan S, Kroon E. Prospective study of acute HIV-1 infection in adults in East Africa and Thailand. N Eng J Med [Internet]. 2016 [citado 2018 abr. 16];374(22):2120-30. Disponible en: DOI: http://dx.doi.org/10.1056/NEJMoa1508952.Prospective
(5) Li Z, Hsieh E, Morano JP, Sheng Y. Exploring HIV-related stigma among HIV-infected men who have sex with men in Beijing, China: a correlation study. AIDS Care [Internet]. 2016 [citado 2017 nov. 14];28(11):1394-401. Disponible en: DOI: https://doi.org/10.1080/09540121.2016.1179713
(6) Chan BT, Pradeep A, Prasad L, Murugesan V, Chandrasekaran E, Kumarasamy N et al. Association between internalized stigma and depression among HIV-positive persons entering into care in southern India. J Glob Health [Internet]. 2017 [citado 2018 jul. 9];7(2):1-9. Disponible en: DOI: 10.7189/jogh.07.020403
(7) UNAIDS. Reduction of stigma and discrimination. 2014 [citado 2018 jul. 26]:1-18. Disponible en: http://www.unaids.org/sites/default/files/media_asset/2014unaidsguidancenote_stigma_en.pdf
(8) Donnelly LR, Bailey L, Jessani A, Postnikoff J, Kerston P, Brondani M. Stigma experiences in marginalized people living with HIV seeking health services and resources in Canada. JANAC [Internet]. 2016 [citado 2017 mar. 26];27(6):768-83. Disponible en: DOI: http://dx.doi.org/10.1016/j.jana.2016.07.003
(9) Organización de los Estados Americanos. Convención interamericana contra toda forma de discriminación e intolerancia [Internet]. 2013 [citado mar. 26]:251-72. Disponible en: http://www.oas.org/es/sla/ddi/tratados_multilaterales_interamericanos_A-69_discriminacion_intolerancia.asp
(10) Audet CM, McGowan CC, Wallston KA, Kipp AM. Relationship between HIV stigma and self-isolation among people living with HIV in Tennessee. PLoS ONE [Internet]. 2013 [citado 2017 mar. 26];8(8):13-6. Disponible en: DOI: http://dx.doi.org/10.1371/journal.pone.0069564
(11) Dalmida SG, Koenig HG, Holstad MM, Wirani MM. The psychological well-being of people living with HIV/AIDS and the role of religious coping and social support. J Psychiatry in Medicine [Internet]. 2013 [citado 2018 abr. 16];46(1):57-83. Disponible en: DOI: http://journals.sagepub.com/doi/10.2190/PM.46.1.e
(12) Waluyo A, Culbert GJ, Levy J, Norr K. Understanding HIV-related stigma among indonesian nurses. JANAC [Internet]. 2016 [citado 2018 oct. 24];26(1):69-80. Disponible en: DOI: 10.1016/j.jana.2014.03.001. Understanding
(13) Páramo DM. La teoría fundamentada (grounded theory), metodología cualitativa de investigación científica. Pensamiento & Gestión [Internet]. 2015 [citado 2018 mar. 3];39:119-14. Disponible en: http://www.scielo.org.co/pdf/pege/n39/n39a01.pdf
(14) Hernández RC. La investigación cualitativa a través de entrevistas: su análisis mediante la teoría fundamentada. Cuest Pedagog [Internet]. 2014 [citado 2018 mar. 3];23:187-210. Disponible en: http://institucional.us.es/revistas/cuestiones/23/Mis_5.pdf
(15) Peltzer JN, Ogawa L, Tusher S, Farnan R, Gerkovich MM. A qualitative description of HIV-infected african american women’s experiences of psychological distress and their coping strategies. JANAC [Internet]. 2017 [citado 2017 jul. 31];28(2):226-37. Disponible en: DOI: http://dx.doi.org/10.1016/j.jana.2016.09.010
(16) Jaggers JR, Dudgeon WD, Burgess S, Phillips KD, Blair SN, Hand GA. Psychological correlates of HIV-related symptom distress. JANAC [Internet]. 2014 [citado 2017 jul. 30];25(4):309-17. Disponible en: http://dx.doi.org/10.1016/j.jana.2013.06.003
(17) Wu AW, Wansom T, Huang IC, CoFrancesco Jr.J, Conant MA, Sarwer DB. The facial appearance inventory: development and preliminary evidence for reliability and validity in people with HIV and lipoatrophy. Aesthet Surg J [Internet]. 2016 [citado 2017 jul. 30];36(7):842-51. Disponible en: DOI: https://doi.org/10.1093/asj/sjw010
(18) Doolittle BR, Justice AC, Fiellin DA. Religion, spirituality, and HIV clinical outcomes: a systematic review of the literature. AIDS Behav [Internet]. 2018 [citado 2018 jul. 9];22:1792-1801. Disponible en: DOI: https://doi.org/10.1007/s10461-016-1651-z
(19) Miller L, Bansal R, Wickramaratne P, Hao X, Tenke CE, Weissman MM, Peterson BS. Neuroanatomical correlates of religiosity and spirituality: a study in adults at high and low familial risk for depression. JAMA Psychiatry [Internet]. 2014 [citado 2018 jul. 31];71(2):128-35. Disponible en: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3921896/pdf/nihms552284.pdf
(20) Bermúdez-Román V, Bran-Piedrahita L, Palacios-Moya L. Influencia del estigma en torno al VIH en el acceso a los servicios de salud. Salud Pública Méx [Internet]. 2015 [citado 2018 jul. 5];57(3):252-9. Disponible en: http://www.scielo.org.mx/scielo.php?script=sci_arttext&pid=S0036-36342015000300014
(21) Tobergte DR, Curtis S. Experience of stigma and discrimination and the implications for healthcare seeking behavior among people living with HIV/AIDS in resource-limited setting. J Chem Inf Model [Internet]. 2013 [citado 2018 jul. 31];53(9):1689-99. Disponible en: DOI: 10.1080/17290376.2013.806645
(22) McDoom MM, Bokhour B, Sullivan M, Drainoni ML. How older black women perceive the effects of stigma and social support on engagement in HIV care. AIDS Patient Care and STDs [Internet]. 2015 [citado 2018 jul. 31];29(2):95-101. Disponible en: DOI: http://dx.doi. org/10.1089/apc.2014.0184
(23) Jürgensen M, Sandøy IF, Michelo C, Fylkesnes K, Mwangala S, Blystad A. The seven Cs of the high acceptability of home-based VCT: results from a mixed methods approach in Zambia. Soc Sci Med [Internet]. 2013 [citado 2018 mar. 13];97:210- 9. Disponible en: DOI: http://dx.doi.org/10.1016/j.socscimed.2013.07.033
(24) Abrefa-Gyan T, Wu L, Lewis MW. Social support and support groups among people with HIV/AIDS in Ghana. Soc Work Health Care [Internet]. 2015 [citado 2017 jul. 31];55(2):1-17. Disponible en: DOI: http://dx.doi.org/10.1080/00981389.2015.1084969
(25) Costa D, Mendes A, Abreu W. Health and mood among HIV-positive outpatients attending an ART clinic of a university hospital. J Clin Nurs [Internet]. 2016 [citado 2018 jul. 31];25(21-22):3209-18. Disponible en: DOI: http://dx.doi.org/10.1111/jocn.13342
(26) Mesquita A, Valcanti C, Neves M, Alves D, Souza F, Lopes E. El bienestar espiritual y la prestación del cuidado espiritual en un equipo de enfermería. Index Enferm [Internet]. 2014 [citado 2018 abr. 16];23(4):219-23. Disponible en: DOI: http://dx.doi.org/10.4321/S1132-12962014000300006
How to Cite
VANCOUVER
ACM
ACS
APA
ABNT
Chicago
Harvard
IEEE
MLA
Turabian
Download Citation
CrossRef Cited-by
1. Alejandra Ximena Araya, Evelyn Iriarte, Kareen Berger. (2021). Síntomas que reportan las personas mayores que viven con VIH. Social Medicine, 14(3), p.153. https://doi.org/10.71164/socialmedicine.v14i3.2021.1279.
2. Mariana Gonçalves, Lais Moraes, Ângela Costa Maia. (2024). HIV Diagnosis in the Context of Stable Relationships: A Qualitative Study With Women Living in Portugal. Journal of the Association of Nurses in AIDS Care, 35(3), p.189. https://doi.org/10.1097/JNC.0000000000000472.
3. Yeimmy Rodriguez-Moreno, Omar Antionio Calderón-Cardona, Jaime Alberto Gallo-Villegas, Carlos Enrique Yepes-Delgado. (2024). Re-signifying HIV through exercise: from death sentence stigma to healthy self-perception. Qualitative Research in Sport, Exercise and Health, 16(4), p.387. https://doi.org/10.1080/2159676X.2024.2330346.
Dimensions
PlumX
Article abstract page views
Downloads
License
Copyright (c) 2018 Avances en Enfermería
This work is licensed under a Creative Commons Attribution 4.0 International License.
All articles published by Avances en Enfermería are licensed under the Creative Commons Attribution 4.0 International License. Starting 2020, we added the CC-BY-NC recognition to the license, which means anyone is allowed to copy, redistribute, remix, transmit and transform our contents with non-commercial purposes, and although new works must adequately cite the original work and source and also pursue non-commercial purposes, users do not have to license derivative works under the same terms.
