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Narrative inquiry and quality of life in women with rheumatoid arthritis
Indagación narrativa y calidad de vida en mujeres con artritis reumatoide
Palabras clave:
Rheumatoid Arthritis, Life Quality, Qualitative Research (en)Artritis reumatoide, Calidad de vida, Investigación cualitativa (es)
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Introduction: Rheumatoid arthritis (RA) has a strong impact on work capacity and quality of life. The prevalence of RA is higher in women in their third and fourth decades of life. In order to understand how RA patients perceive their quality of life, it is necessary to consider their experiences and the meanings they give to their condition as chronic patients. This process also provides relevant information for implementing strategies that contribute to solving their needs and improving their quality of life.
Objective: To describe the perceptions of women with RA about their quality of life.
Materials and methods: Qualitative descriptive study conducted on a sample of 36 women diagnosed with RA who were administered in-depth interviews. Data were organized using the AtlasTI program; on the other hand, the narrative inquiry and the interpretive analysis were carried out according to Ricoeur and Benner, respectively.
Results: The narrative inquiry of the participants’ stories allowed them to describe their quality of life as a state of well-being despite being affected by the disease. The analysis of the narratives told by the participants made evident the need for social security and protection, considering the multiple difficulties faced by people with RA in the current Colombian health system.
Conclusion: The results of this study may be regarded as a contribution to the humanization of health service delivery since they will allow health professionals to reflect on how to approach quality of life from a psychosocial and humanistic perspective.
Introducción. La artritis reumatoide (AR) es una enfermedad que afecta la capacidad laboral y la calidad de vida; su prevalencia es mayor en mujeres entre la tercera y la cuarta década. Para comprender cómo los pacientes con AR perciben su calidad de vida, es necesario considerar sus experiencias y los significados que dan a su condición de enfermo crónico, además este proceso permite obtener información relevante para implementar estrategias que contribuyan a solucionar sus necesidades y mejorar su calidad de vida.
Objetivo. Describir las percepciones de mujeres con AR sobre su calidad de vida.
Materiales y métodos. Estudio descriptivo cualitativo realizado en una muestra de 36 mujeres diagnosticadas con AR a quienes se les realizaron entrevistas a profundidad. Los datos fueron organizados mediante el programa AtlasTI; la indagación narrativa y el análisis interpretativo fueron realizados de acuerdo con lo propuesto por Ricoeur y Benner, respectivamente.
Resultados. La indagación narrativa de los relatos de las participantes les permitió describir su calidad de vida como un estado de bienestar a pesar de que esta se ve afectada por la enfermedad. En el análisis de las narrativas se evidenció que la necesidad de protección y seguridad social es un fenómeno producto de las múltiples dificultades que las personas con AR afrontan en el actual sistema de salud de Colombia.
Conclusión. Los resultados reportados en este estudio pueden considerarse como un aporte para la humanización de la prestación de los servicios de salud, puesto que permitirán a los profesionales de la salud reflexionar sobre cómo abordar la calidad de vida desde un enfoque psicosocial y humanístico.
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Derechos de autor 2020 Revista de la Facultad de Medicina
Esta obra está bajo una licencia Creative Commons Reconocimiento 3.0 Unported.
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